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Appendix O

Important Websites

Below are hyperlinks to connect you to various websites containing important information for family caregivers

U.S. Government Agencies:

Administration on Aging:

330 Independence Avenue SW

Washington D.C. 20201

(202) 619-7501

www.aoa.dhhs.gov

The Administration on Aging (AoA) web site is designed to provide a comprehensive overview of a wide variety of topics, programs and services related to aging. Whether you are an older individual, a caregiver, a community service provider, a researcher, or a student, you will find valuable information provided in a user-friendly way. This website is at www.aoa.dhhs.gov .

To telephone:

Administration on Aging
Washington, DC 20201
Phone: 202 619-0724

Regional Offices of the AOA  may be found on the Internet at http://www.aoa.dhhs.gov/about/org/regional_support_center/org_regional_support_centers.asp

Eldercare Locator
(to find services for an older person in his or her locality): (800) 677-1116

 

Medicare:  www.medicare.gov

 

Nursing Home Information:

American Association of Retired Persons

 

 See the website of AARP for comprehensive assistance in finding, evaluating and choosing nursing homes for your loved one.

http://www.aarp.org/research/longtermcare/nursinghomes/aresearch-import-669-FS10R.html

Medicaid: http://www.cms.hhs.gov/home/medicaid.asp

 

Check for eligibility and benefits on this website.

Additional Information for Caregivers:

Assisted Living Federation of America

11200 Waples Mill Road, Suite 150

Fairfax, VA 22030

(703) 691-8100

www.alfa.org

 Assistance with geographical locations and listings of accredited housing and assisted living facilities for the elderly.

Department of Veteran’s Affairs

810 Vermont Street, NW

Washington, D.C. 20420

(877) 222-VETS

www.va.gov

 Check with the VA to determine whether veteran’s health benefits are available for your loved one. Often medications and medical services are available to elderly veterans at low cost or no cost.

Family Caregiver Alliance

690 Market Street, Suite 200

San Francisco, CA 94104

(415) 434-3388

www.caregiver.org 

This association provides support and other resources for caregivers.

Hospice Foundation of America

2001 S Street NW, Suite 300

Washington, D.C. 20009

(800) 854-3402

www.hospicefoundation.org  

The hospice philosophy and practice is available from this organization.

Hospicelink


1-800-331-1620
 

This resource provides general information on hospice care and referrals to hospices across the country.

National Hospice and Palliative Care Organization


1700 Diagonal Road, Suite 625
Alexandria, VA 22314
703-837-1500

 http://www.nhpco.org 

This organization offers information, patient advocacy, professional education, and referrals to hospice programs throughout the country

National Association of Professional Geriatric Care Managers

1604 North Country Club Drive

Tucson, AZ 85716

(520) 881-8008 

To find a geriatric care manager in your loved one's locality, use the search engine

at the website of the above organization.  www.caremanager.org/

or www.findacaremanager.org

National Adult Day Services Association, Inc.
2519 Connecticut Ave, NW
Washington, DC 20008
Toll Free Phone:1-800-558-5301
Fax: 202-783-2255
E-mail: info@nadsa.or

Guide to Selecting an Adult Day Center. This guide will help you in your

search for quality, community Adult Day Services. 

 Nursing Services Search Engines:  Elder Locator 

The Eldercare Locator is the first step to finding resources for older adults in any U.S. community. It is a free national service of the Administration on Aging, U.S. Department of Health and Human Services. Just one phone call or Website visit provides an instant connection to resources that enable older persons to live independently in their communities. Support services for caregivers are also available. See this search engine as well.

Partnership for Caring

1620 Eye Street NW, Suite 202

Washington, D.C. 20006

(800) 989-9455

www.partnershipforcaring.org 

Free state-specific sample forms for durable powers of attorney and living wills are provided by this non-profit organization.

Shepherd’s Centers of America

One West Armour Blvd., Suite 201

Kansas City, MO 64111

(800) 547-7073; (816) 960-2022

www.shepherdcenters.org

The Shepherd’s Centers train senior citizens to provide part-time respite care. At this time, more than 100 centers are operating around the US.

 

Visiting Nurse Associations of America

11 Beacon Street, Suite 910

Boston, MA 02108

(800) 426-2547; (888) 866-8773; (617) 523-4042

www.vnaa.org

Obtain information and referrals for home health care and hospice programs at this website.

Consumer Advocate Groups: 

National Citizen’s Coalition for Nursing Home Reform

 

1424 16th Street, NW Suite 202

Washington, D.C. 20036

(202) 332-2275

www.nccnhr.org

An organization devoted to promoting quality care in nursing homes, advocating for a resolution to understaffing issues.

State Ombudsmen:

www.nccnhr.org/static_pages/ombudsmen_list.cfm

Use this website to locate a state ombudsman, an advocate for residents of nursing homes, board and care homes, and assisted living facilities.

Citizen’s Groups Supporting Nursing Home Reform:

www.nccnhr.org/static_pages/Citizens_groups_list.cfm

 Calculators on the Internet:

The calculators discussed in this book are

      Osmolality calculator: www.intmed.mcw.edu/clincalc/osmol.html

      Estimated Creatinine Clearance Calculator:

      http://www.nkdep.nih.gov/professionals/gfr_calculators/index.htm

      Another GFR calculator is found here.

      http://www.clinicalculator.com/english/nephrology/cockroft/cca.htm

Body Mass Index (BMI) calculator: www.dr-bob.org/tips/bmi.html

 

Organizations:

Meals on Wheels Association of America

1414 Prince Street, Suite 302

Alexandria, Virginia 22314

(703) 548-5558

www.mowaa.org 

You will find meal delivery programs in your loved one’s community at Meals on Wheels.

Medical Dictionaries:

            www.medicinenet.com

           www.medterms.com/script/main/np.asp 

Family Medicine Journals:

Find the American Family Physician (Journal of the American Academy of Family Physicians) at www.aafp.org/afp/index.html.

Find health information from the American Academy of Family Physicians at

 www.familydoctor.org.

 

 The Merck Manuals:

The 17th Edition of  is available online. The Merck Manual of Diagnosis and Therapy, 18th Edition of The Merck Manual of Diagnosis and Therapy will be available as a printed book in April 2006. This new edition is completely updated and organized to make it even easier to find information quickly. To purchase the new edition, go to The Merck Publishing Group website (www.MerckBooks.com).

To access The Merck Manual of Diagnosis and Therapy, 17th Edition, use the URL below. The
Editors are Mark H. Beers, M.D., and Robert Berkow, M.D.

To access The Merck Manual of Geriatrics, 3rd Edition, use the URL below. The Editor-in-Chief is Mark H. Beers, M.D; the Editor is Thomas V. Jones, M.D., M.P.H ditor-in-Chief
 

            www.merck.com/pubs/mmanual

            www.merck.com/pubs/mm_geriatrics

 Organizations Providing Information on Specific Diseases and Conditions

Commonly Affecting the Elderly:

Alzheimer’s Association                            

ALS Association

919 North Michigan Ave. Ste. 1100  

2101 Ventura Boulevard, Ste 321

2101 Ventura Boulevard

Woodland, CA 91364

Chicago, IL 60611 

1-800-782-4747

(800) 335-8700

 

www.alz.org

Provides information and educational materials about ALS (Lou Gehrig's Disease)

 

 

American Academy of Opthamology

American Academy of Hospice and Palliative Medicine

 P.O. Box 7427   

11250 Roger Bacon Drive

San Francisco, CA 94120

Suite 8, Reston, VA 20190-5202

(415) 561-8500

703-787-7718

www.aao.org  

www.aahpm.org

 

 

American Diabetes Association

American Urological Association Foundation

1701 N. Beauregard Street 

1120 North Charles Street

Alexandria, VA 22311 

Baltimore, MD 21201

(800) 342-2383 

(410) 727-4400

www.diabetes.org 

 www.afud.org

 

 

American Heart Association

American Lung Association

7272 Greenville Avenue

1740 Broadway

Dallas TX 75231

New York, NY 10019

(800) AHA-USA1 

(800) LUNG-USA; (212) 315-8700

www.americanheart.org

 www.lungusa.org

 

 

American Medical Association

American Pain Society

515 North State Street 

5700 Old Orchard Road, 1st Floor

Chicago, IL 60610

Skokie, IL 60077

(312) 464-5000 

847-375-4715

www.ama-assn.org

 www.ampainsoc.org

 

Referrals to pain clinics, physicians, support groups

 

 

American Parkinson's Disease Association

American Stroke Association

1250 Hylan Blvd., Suite 4B

7272 Greenville Avenue

Staten Island, NY 10305

Dallas, TX 75231

Telephone: 718-981-8001 or 800-223-2732

(888) 4-STROKE; (888) 478-7653

www.apdaparkinson.org

www.strokeassociation.org

 

 

Arthritis Foundation

Parkinson’s Disease Foundation

1330 West Peachtree Street

1359 Broadway, Ste 1509         

Atlanta, GA 30309

New York, NY 10018

(800) 283-7800, (404) 872-7100

(800) 457-6676  (212) 923-4700

www.arthritis.org

 www.pdf.org

 

 

Cancer Information Service

Cancer Care, Inc.

1-800-4-CANCER (422-6237)

1180 Avenue of the Americas

Has 19 offices across the country. Provides 

New York, NY 10036

information about cancer and referrals to hospice,

1-800-813-HOPE (4673)

home care, and support groups

http://www.cancercare.org
 

National Cancer Institute

National Kidney Foundation

Public Inquiries Office 

30 East 33rd Street, Ste. 1100

Building 31, Room 10A31

New York, NY 10016

Bethesda, MD 20892

(800) 622-9010

(800) CANCER

www.kidney.org         

www.nci.nih.gov

 
 

National Institute of Neurological

National Osteoporosis Foundation

Disorders and Stroke

1232 22nd Street, NW

Office of Communications/Public Liason

Washington, D.C. 20037-1292

P.O. Box 5810

(202) 223-2226

Bethesda, MD 20824

www.nof.org

(800) 352-9424

 

http://www.ninds.nih.gov/

 

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Taking Charge: Good Medical Care for the Elderly & How to Get It. A Caregiver's Manual in How to Detect, Manage, and Prevent Six Common, Fatal Conditions in the Elderly Patient | Home |Table of Contents | Delirium | Medication Errors | Adverse Drug Reactions | Falls | Dehydration | Protein-Energy Malnutrition | How to Avoid Problems Caused by Under-Staffing in Nursing Homes | How to Handle End-of-Life Decision-Making | Appendices |   Disclaimer

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